…the Lord is King! IRP was told by the doctor today that she does not need any further surgeries. He took out the final drain and declared her finished. She has another checkup next month, but other than that she can just get on with her life.~~TSG
Posts Tagged ‘medical
rejoice,…
the new normal
Praise God! IRP is happier and healthier now than she has been in years. She is relieved that, with the permanent colostomy, she knows what to expect. As she said to me, “at least I won’t wake up every day wondering what is going to break and will it succeed in killing me this time?”. This is not the solution we really wanted, but it is one that is working. I could not ask for anything more. Thanks and love to our prayer partners!~~TSG
this is getting old
Well, here we are again. IRP called at about 10:30 this morning in terrible pain. I ran her up to her doctor and he had her admitted to the hospital. The hospital was full, so it was nearly 3:00 by the time she got a room. Since then, we have been struggling to keep her out of pain and to get her to keep contrast liquid down. Finally, I decided to have the nurse tell IRP’s doctor that she was never going to be able to keep anything down unless he could get, and keep, her out of pain. The nurse had already come to this conclusion and informed the doctor. She was actually on the way to IRP’s room with a syringe full of morphine and the information that the scan would be performed without contrast fluid. They will be coming for IRP shortly. Please pray that the reason for the problem will be relatively mild and quickly solved. Thank you!~~TSG
our ways are not his ways…
IRP went into surgery at 1pm. At 3:15, the doctor came out to speak with us. The fistula has been successfully closed. However, IRP will have to deal with a colostomy for the rest of her life. There is simply not enough material left to reconnect her in the normal manner. In fact, the colon could not be stitched to the stoma today. A temporary plastic stent has been put in to allow for the growth of scar tissue. In three or four weeks, the doctor will use the scar tissue to complete the connection.
IRP has been dealing with the difficulties caused by Hirschsprung’s for her entire life in one way or another. This is the end of that. The permanent colostomy does not make any difference to her fiancé who says it is “just a thing” which has nothing to do with her as a person. 🙂 I asked the doctor about IRP’s main concern; would she be able to conceive and carry children. He said that she has the correct equipment and it is in fine shape. Should scar tissue prevent regular conception, there are other methods to conceive. Most importantly, she will be able to carry a child to term. It has always been IRP’s worst fear that her condition would make this impossible.
God’s ways are not ours, but I know they have a purpose. Please continue to pray for a quick recovery and return to normal life. As always, thank you!~~TSG
IRP needs surgery once more. She has developed a fistula and the doctor will have to repair it and give her a temporary ileostomy again. I will let you look up the meaning of ‘fistula’ for yourself if necessary. Suffice it to say that it has given her an infection and made life much worse for her. As you probably guessed, IRP is very tired of all of this. She tells me that, if there is even a chance of anything going wrong after this, she is just going to keep the ileostomy. I am praying for God to heal this breech before the surgeon has to. Please join me; IRP really needs this to be over. Thank you!~~TSG
april 25
This is the date of (we hope and pray) the final surgery for IRP. The temporary ileostomy will be reversed and, after a few days of liquid and soft diets, she will have normal bowel function for the first time in her life. Please pray that all will go to plan. Thank you!~~TSG
forgot the update
Oops! I forgot to update you on IRP. She had an infection with resulting fluid build-up in her abdomen. She was in the hospital for about four days while being given IV antibiotics. The doctor put a stent in to drain the fluid and she went home with it. A week later, IRP went in to have the stent removed. The doctor hopes to operate for the last time in April to reconnect the temporary ileostomy.~~tsg
well, here we are again
At about nine this morning, IRP called to tell me that she had a fever, was nauseous and had pain where the re-connection of her bowel was done. So, we are in the emergency room of the hospital waiting for tests to tell us what is up. The staff seems to think she may have an infection and a blockage. I certainly hope not, but it does seem likely given that these are the same symptoms she had the last time that happened. I am beginning to despair of ever getting IRP’s problem totally fixed. I am sure she is much more frustrated than I am, though. All prayers, good thoughts, etc. gratefully received.~~TSG
school tomorrow
Well, IRP is feeling pretty good. She will be starting the Spring 2014 semester tomorrow in the college’s “late start” classes. One of her two classes is on-line, so she won’t be wearing herself out.~~TSG
rough night
Yesterday, they began weaning IRP off the pain and anti-spasm meds. Unfortunately, she was not ready for this step. At about seven o’clock, she began having horrible stomach spasms. Tears were streaming down her face and she was trying hard not to yell. She was mostly losing the latter battle. TBF had been going to go home to get some studying done, but he would not leave while IRP was in pain. We did not get things sorted out until after ten. IRP is back on all the medications and we will speak to the doctor this morning about what we can do to control her pain better.
We got a little sleep, but I anticipate that IRP will spend most of the day resting. She wants to go walking now while she feels relatively well. We will do that as soon as she is given her antibiotic and the anti-coagulate.~TSG
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