Archive for the 'Medical' Category



14
Apr
14

april 25

This is the date of (we hope and pray) the final surgery for IRP. The temporary ileostomy will be reversed and, after a few days of liquid and soft diets, she will have normal bowel function for the first time in her life. Please pray that all will go to plan. Thank you!~~TSG

02
Mar
14

forgot the update

Oops! I forgot to update you on IRP. She had an infection with resulting fluid build-up in her abdomen. She was in the hospital for about four days while being given IV antibiotics. The doctor put a stent in to drain the fluid and she went home with it. A week later, IRP went in to have the stent removed. The doctor hopes to operate for the last time in April to reconnect the temporary ileostomy.~~tsg

09
Feb
14

well, here we are again

At about nine this morning, IRP called to tell me that she had a fever, was nauseous and had pain where the re-connection of her bowel was done. So, we are in the emergency room of the hospital waiting for tests to tell us what is up. The staff seems to think she may have an infection and a blockage. I certainly hope not, but it does seem likely given that these are the same symptoms she had the last time that happened. I am beginning to despair of ever getting IRP’s problem totally fixed. I am sure she is much more frustrated than I am, though. All prayers, good thoughts, etc. gratefully received.~~TSG

26
Jan
14

school tomorrow

Well, IRP is feeling pretty good. She will be starting the Spring 2014 semester tomorrow in the college’s “late start” classes. One of her two classes is on-line, so she won’t be wearing herself out.~~TSG

20
Jan
14

rough night

Yesterday, they began weaning IRP off the pain and anti-spasm meds. Unfortunately, she was not ready for this step. At about seven o’clock, she began having horrible stomach spasms. Tears were streaming down her face and she was trying hard not to yell. She was mostly losing the latter battle. TBF had been going to go home to get some studying done, but he would not leave while IRP was in pain. We did not get things sorted out until after ten. IRP is back on all the medications and we will speak to the doctor this morning about what we can do to control her pain better.

We got a little sleep, but I anticipate that IRP will spend most of the day resting. She wants to go walking now while she feels relatively well. We will do that as soon as she is given her antibiotic and the anti-coagulate.~TSG

19
Jan
14

rapid progress

This morning, the doctor took the bandage off the mid-line incision in IRP’s stomach. He had used the incision line that was already there and just had to lengthen it a bit. We appreciate very much that Dr.B has tried, wherever possible, to use existing scars to place incisions instead of making new ones. Since IRP is young (22), she is very worried about such things. Fortunately, TBF (the boyfriend) does not care about such things and has spent a lot of time up at the hospital helping IRP in any way he can.

IRP is also being allowed to eat soft foods. Considering the amount of time it took us to get to this stage after the last operation, this is really rapid progress. IRP has been up walking already this morning. The pain is also subsiding. This is really good since she has almost reached the end of the amount of Demoral (the pain medication that works best for her) that the hospital can give her. After six tonight, she will not be able to have anymore. Hopefully, the on-demand button and the anti-inflammatory will be able to keep her pain under control after that.

Thanks to everyone for their concern.~TSG

19
Jan
14

recovering

IRP is feeling much better. She has been walking several times today and has progressed to clear liquids. The doctor’s assistant was in and said things had gone so well that the ileostomy might be reversible in as little as eight weeks. As you might imagine, this cheered IRP up considerably. Thanks to everyone for their prayers and good thoughts.~TSG

18
Jan
14

The Result of the Most Recent Surgery

So, today IRP had yet another surgery. This was to reconnect her rectum to her large intestine after last year’s “blow-out”. It appears that the doctor who corrected her Hirschprung’s failed to get all of the affected area out. As a result, IRP suffered a ruptured bowel and spent three weeks in the hospital recovering from that and the resulting massive infection. A colostomy also had to be performed at the same time to give her time to recover so that we could decide what would need to be done next. I did not post about this and other events at the time they occurred because I was just so shocked and angry. We almost lost her!

The surgery today went well, but IRP has another temporary ileostomy. The doctor who reconnected her said that he had tested the repair and the reversal of the colostomy and no air came through either. He probably could have not done the ileostomy. However, due to what happened last time, he was not willing to risk a recurrence. He would rather take the conservative approach since another rupture might mean that IRP would have to have a permanent colostomy. Although many people live with this, we do not want IRP to have to do so if it can be avoided. Any prayers or good thoughts you care to send our way will be greatly appreciated.~TSG

24
Nov
13

good (and bad) for me

Friday, I went to an orthopedist to see why my hip and knee on the right side are beginning to give me worse pain and more frequently. I assumed that, since the original problem fifteen years ago had been walking to favor an injury in my back, that I now had arthritis in the hip and knee as well. I don’t! What I do have is bursitis. I will be looking that up later today to be entirely sure what it is. So, I should lose weight (I am already on that) and do exercises that will stretch and strengthen those body parts. I go back in six weeks and hope to report some success.~TSG

24
Oct
13

i ran, but i couldn’t hide

Yesterday, as usual, I stayed home while the college I work at held their annual “Pink Out”. As you can probably guess, this involves everyone’s wearing pink to support breast cancer awareness. I don’t work on this day because I cannot handle this; it gives me panic attacks. So, I stay home and do things I would do if I were on vacation.

This year however, I had panic attacks anyway. This stemmed from an innocent conversation with a co-worker. Let me say up front that I know this person meant well and is just concerned for me. When I said that I would not be in on Wednesday, s/he asked why. I explained that it was too painful for me and that it caused panic attacks. S/he asked, “Have you sought professional help for this?”. I felt as if someone had slapped me across the face. The “correct” way of dealing with breast cancer has so worked itself into the collective consciousness that my reaction to it is seen as a “problem”. If I had announced that I could not attend a meeting about SIDS (Sudden Infant Death Syndrome) because I had lost a child in that manner (I did not, but I feel great sorrow for those who have), no one would have said a word. But, because I don’t want to be pink and cheerful over having my quality of life permanently damaged; I need help.

I do NOT need help. I need people to get that there is something wrong with this entire process. In the 1960’s, when I was born, the main treatment for this cancer was removal of breasts. It is completely ridiculous that, almost 50 years later, that is still the standard! Seriously!? FIX THIS! We are not impressed.

If I were to start a charity, I would call it FixThisNow. There would be no t-shirts, mugs or other merchandise. Every penny not needed to keep things running would go straight to independent research not funded by anything but those monies. No corporations, no hospitals, no drug companies. Then, maybe we could get somewhere because no one would have a stake in keeping this disease around.

Women who have had breast cancer are not the problem, regardless of how they chose to cope. Cancer IS the problem and we need unbiased people trying to solve it.–TSG